The Impact of Care Upon Alzheimer Patient’s Family Caregiver in Sulaimani City
https://doi.org/10.24017/science.2019.1.7
Abstract views: 1433 / PDF downloads: 924Abstract
Family Care giving for relatives with Alzheimer, often includes assisting them with one or more activities of daily living, as Alzheimer is one of the progressive impairment diseases in patient’s physical and cognitive ability. The aim of this study is to assess the effect of being a family caregiver of Alzheimer patients in Sulaimani city. A cross-sectional quantitative study carried out among family members who care for older patients with Alzheimer’s disease. The instrument was designed and constructed by the researcher through an intensive review of the literature and also through a series of meeting survey with caregivers in order to measure the variables underlying the present study. The data were obtained by the researcher, who interviewed families, structured questionnaire forms filled out with a total of 100 families. These were taken using a random sample of those families have Alzheimer’s problem in Sulaimani city. The majority of participants were women with a mean age 53.75 years old, married, housewives and with university education. More than half of the Caregiver was suffered from moderate to severe burdens. Rotated Component Matrix was used to get the level of effectiveness by a series of components according to the important effects of the variables on Alzheimer disease. The researcher found that the financial burden has taken the first order, followed by psychological and then a social burden. The finding of the study shows a significant relationship between some demographic characteristics and the three dimensions of the burden. It appears that financial factor is in the first rank by a total variance (85.151), then psychological factors by a total variance (81.532) then the social factor by total variance (65.851). Financial factor was the strongest factor that impacted their family income. Some psychosocial oriented services are recommended for the caregivers in order to decrease the stress and help them to adapt to the situation. Some educational programs are also required to facilitate providing enhanced physical and psychological care. This study also recommends allocating salary for every patient to ease the financial burden on the caregivers
Keywords:
References
https://doi.org/10.2174/1573399811309030003
[2] DA. Casey, D. Antimisiaris, J. O'Brien "Drugs for Alzheimer'sDisease: Are They Effective?". Journal List; 35(4), PP. 208-211. 2010.
[3] B.Winblad, P. Amouyel, S.Andrieu, C Ballard, C.Brayne, H..Brodaty et al.,"DefeatingAlzheimer"s disease and other dementias : a priority for European science and society." Lancet Neurol;15(10):1007-1008. 2016.
https://doi.org/10.1016/S1474-4422(16)00062-4
[4] R. Brookmeyer, N. Abdalla, CH. Kawas, MM. Corrada. "Forecasting the prevalence of preclinical and clinical Alzheimer's disease in the United States" Alzheimer's & Dementia; 14 (2). pp 121-129. 2017.
https://doi.org/10.1016/j.jalz.2017.10.009
[5] A. Innes, F. Kelly, and L. McCabe "Challenges of developing a dementia strategy: the case of Malta. In Key issues in evolving dementia care" International theory-based policy and practice. 1 (2). Pp. 133-142. 2016.
[6] E. Elifkoca, O. Taskaplljoglu, M. Bakar"Caregiver Burden in different Stages of Alzheimer"s disease".NoroPsikiyatrArs. 54(1): 82-86. 2017.
https://doi.org/10.5152/npa.2017.11304
[7] A. Girgis, S. Lambert, C. Johnson, A. Waller, D Currow "Physical, Psychosocial, Relationship, and Economic Burden of Caring for People With Cancer" J OncolPract.. 9(4): 197-202. 2013.
https://doi.org/10.1200/JOP.2012.000690
[8] M. Bevans,E. Stemberg "Caregiving Burden, Stress, and Health Effects Among Family Caregivers" Journal American Medical Association 307(4). pp. 398-403. 2012.
https://doi.org/10.1001/jama.2012.29
[9] E. Berglund, P. Lytsy, R.Westerling. "Health and wellbeing in informal caregivers and non-caregivers: A comparative cross-sectional study of the Swedish general population". Health and Quality of Life Outcomes. 13(1). pp.1-11. 2015.
https://doi.org/10.1186/s12955-015-0309-2
[10] M. Jakobsen, P.B.Poulsen, T.Reiche , N.P.Nissen, J. Gundgaard " Costs of Informal Care for People Suffering from Dementia. Dementia and geriatric" Dementia and Geriatric Cognitive Disorders EXTRA. 54(1). pp 82-86. 2011.
https://doi.org/10.1159/000333812
[11] D. Dettmore, A. Kolanowski, M. Boustani"Aggression in Persons with Dementia"Geriatric Nursing Journal. pp 30(1): 8-17. 2012.
https://doi.org/10.1016/j.gerinurse.2008.03.001
[12] A. Leslie, R. L. Allison, J G.Carolyn, S. R. Craig: "Treating Anger and Aggression in Military Populations: Research Updates and Clinical Implications" Clinical Psychology Science and Practice 19(3). pp 305-322. 2012.
https://doi.org/10.1111/cpsp.12007
[13] R. Bateman, C. Xiong, TL.Benzinger, AM. Fagan, A.Goate, NC.Fox, et al. "Clinical and biomarker changes in dominantly inherited Alzheimer"s disease". The New England Journal of Medicine., 367(9), pp795-804. 2012
https://doi.org/10.1056/NEJMoa1202753
[14] K. Amy, R.Gorges."The Burden of Health Care Costs for Patients With Dementia in the Last 5 Years of Life", Annals of internal medicine Journal. 163(10),. pp 729-736. 2015.
https://doi.org/10.7326/M15-0381
[15] E.M.Friedman, R.A.hih,K.M.Langa. "prevalencand predictors of informal caregiving for dementia". Health Aff; 34(10):1637-41.16. 2015
https://doi.org/10.1377/hlthaff.2015.0510
[16] B. Akp?nar, O. Küçükgüçlü, G. Yener. "Effects of Gender on Burden Among Caregivers of Alzheimer's Patients". Journal of Nursing Scholarship.43(3). pp.248-54. 2011.
https://doi.org/10.1111/j.1547-5069.2011.01402.x
[17] Alzheimer"s Association "Alzheimer"s Association Report 2019 Alzheimer"s disease facts and figures" Alzheimer"s& Dementia 15; pp 321-387. 2019.
https://doi.org/10.1016/j.jalz.2019.01.010
[18] L. Fernandes and C. Paúl "Aging & Mental Health" Front Aging Neuroscince. 9; pp 1-3. 2017.
https://doi.org/10.3389/fnagi.2017.00025
[19] R. Schulz, SH. Belle, SJ.Czaja, KA. McGinnis A. Stevens, S. Zhang "Long-term care placement of dementia patients and caregiver health and well-being". Journal American Medical Association., 292(8). pp 961-967. 2004.
https://doi.org/10.1001/jama.292.8.961
[20] National Alliance for Caregiving in Partnership with the Alzheimer"s Association Dementia.The American Journal of Geriatric Psychiatry. 23(4,), pp 391-402. 2015.
[21] EM. Friedman, RA. Shih, KM.Langa, MD.Hurd. "prevalence and predictors of informal caregiving for dementia". Health Affairs;34(10), pp1637-1641. 2015.
https://doi.org/10.1377/hlthaff.2015.0510
[22] M. Miyashita., A. Yamaguchi, M. Kayama, Y. Narita, N. Kawada, M. Akiyama et al,. "Validation of the Burden Index of Caregivers (BIC), a multidimensional short care burden scale from Japan" Health Qual Life Outcomes. 4:(52.). pp 1-9. 2006.
https://doi.org/10.1186/1477-7525-4-52
[23] G. Fadden ,P.Bebbington,L. Kuipers "The burden of care: the impact of functional psychiatric illness on the patient"s family. British Journal of Psychiatry.;150:. pp285--292. 2018.
https://doi.org/10.1192/bjp.150.3.285
[24] J. Lloyd, T Patterson, J. Muers "The positive aspects of caregiving in dementia: A critical review of the qualitative literature". Dementia. 15(6). pp1534-61. 2016.
https://doi.org/10.1177/1471301214564792
[25] S.Atteih, L. Mellon, P. Hall, L Brewer, F. Horgan D. Williams et al. "Implications of stroke for caregiver outcomes: Findings from the ASPIRE-S Study". International journal of Stroke. 10. pp 918- 923. 2015.
https://doi.org/10.1111/ijs.12535
[26] R.Preidt, "The high cost of Alzheimer's", Health Day reporter about sharp increase in Alzheimer's disease cases. Deaths and costs are stressing the US health care system and caregivers. 2018.
[27] S. Amy. R. Gorges, S. Jonathan. "The Burden of Health Care Costs for Patients with Dementia in the Last 5 Years of Life" Annals of Internal Medicine;163 (10). pp 729-736. 2015.
https://doi.org/10.7326/M15-0381
Downloads
How to Cite
